Mesothelioma

Tragically the word mesothelioma is becoming more and more well known, the mere mention of it striking fear into all of us for we know that it is associated with death.  Asbestos is the reaper, mesothelioma its hand maiden. 
Asbestos, the wonder product of the fifties is now recognized as an enemy of the twentieth century. A ruthless enemy which will kill more people than the war.  Men, women and children will fall victim to its prey, innocents who have at some time in their lives inhaled asbestos dust. 
Most of us have been in contact with products containing asbestos in our life times.  We sat in asbestos class rooms, stood beside our fathers as they cut asbestos fencing, pulled up old linoleum with asbestos clogged to the back of it.  Visited the local tip where broken sheets of it lay open to the wind.

Records show that there are a higher number of people afflicted with asbestosis and mesothelioma who have directly worked in asbestos mines, ship yards and companies making products from asbestos; however there are a large number of people afflicted, who have never worked in these industries.  Their contact with asbestos, due to the dust brought home on their husband’s clothes or from the asbestos tailings placed around mine houses and town perimeters.  But the tragedy does not end there, children innocently playing in their own back yards played amongst the asbestos tailings as children elsewhere play in the sand.  They had no way of knowing that their sand was asbestos blue.  A good bath at the end of the day may have removed the dust from the skin but the dust in the lungs remained and would lay dormant for many years before claiming its deadly legacy.
Without warning, a healthy individual suddenly becomes short of breath, x-rays reveal fluid on the lungs and the night mare begins.  Questions are asked and you answer, Yes, I was exposed to asbestos dust but I was only in the town for a few short months and that was over 40 years ago.  How can this be? This is the most perplexing thing about mesothelioma.  Why is there such a long period of time between inhalation of asbestos dust and onset of the disease?  What triggers a strong healthy body to suddenly succumb to it?  What can we do to prevent this from happening?
Blood tests are now available to determine whether mesothelioma is present in the body, before a person is aware of any symptoms.  This is an amazing breakthrough and perhaps the first step towards curing the disease before it becomes terminal.  Recently mesothelioma was cured in a mouse and attempts to give it back to the mouse were unsuccessful.  This too is exciting stuff and holds a glimmer of hope for us all. 
I have witnessed first hand the devastation of mesothelioma. My husband was a strong and virile man who rarely had a sick day in his life.  Suddenly at the age of 52 he became short of breath and was subsequently diagnosed with pleural mesothelioma.  He had lived in the asbestos mining town of Wittenoom in Western Australia for a few short months at the age of seven.  The asbestos dust he inhaled then, took forty five years to become lethal.  I still find this hard to believe.
Despite his prognosis of three to nine months, Brian survived for two years.  He was 54 years old when he died.

 

Asbestos Killed my Husband

    In December 1999, my husband and I were walking home from a game of lawn bowls when I became aware of his shortness of breath. I was surprised and concerned when he told me that he had experienced this on several occasions. Believing this to be due to chest a infection, I made a doctor’s appointment for him the next day.
Chest X-rays revealed fluid on the lungs, over two litres of which was drained, giving Brian immediate relief, but it was a tense wait for the pathology results. Through the Internet I had become aware of several conditions which may have been responsible for fluid on the lung; these included asbestos- related diseases. Brian had lived in Wittenoom as a child and I was afraid of his diagnosis. Not wanting to worry him unnecessarily, I did not mention my fears to him. I prayed that he had pleurisy or pneumonia but the pathology results revealed that there were cancer cells present.
When Brian finally received his diagnosis, my worst nightmare became reality. He had pleural mesothelioma, a terminal cancer of the lung caused by the inhalation of asbestos dust. We found it inconceivable that the disease was the result of Brian inhaling asbestos dust as a child and that it had lain dormant for forty-five years before become lethal.
We were still reeling from the shock when, without preamble, the young doctor gave his prognosis. His exact words were, “Three to nine months, I reckon”. That he could say this so unfeelingly amazed me. His total lack of compassion did not encourage even the small comfort of tears. I felt as if Brian and I had been shot and from that moment on we were waiting to drop.
Undoubtedly, were mortally wounded. We suffered shock, disbelief, anger, helplessness and utter despair; in fact all the symptoms of grief one feels when a loved one has actually died. Suddenly, we had no control over our lives, our journey through terminal illness had begun.
Throughout the course of our married life my deep love for Brian and my determination to resolve difficulties had seen us through many trials. I found it hard to believe that nothing could be done to save his life and begun surfing the Internet for information regarding mesothelioma, all the time praying for a miracle, hoping against hope to find a doctor who had successfully operated on or cured someone of it.
It was a sad realization to discover that for Brian there were no miracles; however, I learned a lot and it helped me to accept that he was dying. With my acceptance came a fierce determination to ease his burden. I continued to seek information regarding mesothelioma and the pain and symptoms Brian would experience, due to the progression of his disease. In this way, I came to understand the importance of pain management and symptom control and realized that although I could not stop Brian from dying – I could help him to live.
My acquired knowledge regarding pain and symptom management enabled me to communicate with Brian and to understand the type of pain he was experiencing and the intensity of that pain. I was then able to work hand in hand with his doctors, to bring his pain and symptoms under control. As my efforts resulted in his improved quality of life, I lost my sense of helplessness and gained strength.
Together, we achieved for Brian, a quality of life few thought possible, considering the nature of his disease. Testament to this, despite his prognosis of three to nine months, Brian survived for 2 years, remained active and alert, drove his car for eighteen months after diagnosis and was not bed bound until three short days prior to his death.
Brian's courageous battle with mesothelioma came to an end on the 24th December 2001; he passed away at home surrounded by his loved ones. He was 54 years old.